Alcohol use during pregnancy is the leading preventable cause of birth defects and neurodevelopmental abnormalities in the U.S. Boston Medical Center and the PROOF Alliance were awarded a $2.9 million HRSA grant to provide FASD education to qualified health centers in the Northeast and Upper Midwest. "The SAFEST Choice Learning Collaborative" aims to reduce prenatal alcohol exposure and improve outcomes in children with suspected or diagnosed FASD. Participation in the first cohort began in June 2021. Recruitment for the second cohort is now closed. Training began May 2022.
BMC and Proof Alliance are working on a possible third cohort 2023.
After an introductory webinar there will be ten 60-minute virtual ECHO® sessions delivered over the course of 12 months. Each session will provide a brief lecture by experts, case-based learning and collaborative problem-solving.
Training will include prenatal screening and support, and how to identify and care for children and adolescents with suspected or diagnosed FASD.
A modest stipend to use for equipment, resources, or a clinic "champion" to help implement the program.
Free Continuing Education (CME, CNE, and Social Work) and MOC Part 2 credits
Ongoing, individualized training and assistance to address implementation challenges
No minimum prenatal/pediatric patient participation, or data collection/electronic record keeping
Participating CHCs are encouraged to invite all appropriate clinic staff to the training - medical personnel, behavioral health staff, community outreach workers.
The St. Croix Regional Family Health Center, Janice Small NP, Princeton, ME was the first clinic participant in Maine. As of April 2022, Maine participants in the second cohort include the Pediatric Rapid Evaluation Program (PREP) team, Dr. Andrea Tracy MD, at Edmund N. Ervin Pediatric Center; the Passamaquoddy Health Center, Dr. Sunee Lovely MD, Princeton; and Midcoast Pediatrics, Brunswick.
If you would like more information about how your clinic can participate in the SAFEST Choice Learning Collaborative, click below.
Eligibility requirements have changed - participation is not limited to FQHCs - providers who serve prenatal or pediatric patients are eligible.
A child or adolescent with an FASD may have a combination of physical, neurodevelopmental, neurocognitive, and behavioral problems with each manifesting a range of severity. It is not known how many people in the United States have an FASD. Several initial studies, using active case findings of school-aged children, indicate that 1% to 5% of children in the United States may have an FASD. Centers for Disease Control and Prevention/ MMWR 2022 indicates that 1 in 7 pregnant adults report alcohol use.
An FASD diagnosis provides families, pediatricians and nonphysician clinicians a framework for understanding an individual’s behavior. Science indicates that therapeutic interventions, special education and support services improve outcomes for patients and families. The protective effect of early diagnosis can reduce the risk of additional disabilities and mitigate lifelong consequences. Ongoing care in a supportive pediatric home is an important component to achieving health and wellbeing for any child with an FASD and their family.
AAP FASD Live Webinar Training for AAP Members and Staff
The American Academy of Pediatrics (AAP) established the Fetal Alcohol Spectrum Disorders (FASD) Regional Education and Awareness Liaisons (REAL) Champions Network in 2016. The goals of the FASD champions network are to meet the identified needs to improve pediatricians' capacity for early identification of at risk children and to address the role of stigma and bias in addressing prenatal alcohol exposure with families and caregivers.
The FASD REAL Champions are available to provide training to pediatricians within their AAP district. Champions are prepared to lead trainings and facilitate webinars and Grand Rounds presentations using the training modules developed under the auspices of the "Improving FASDs Prevention and Practice through National Partnerships Collaborative."
For more information on the FASD champions network or to schedule a training session at your site, contact Josh Benke, FASD Program Manager at firstname.lastname@example.org or 630-626-6081.
Pan American Health Association World Health Organization (WHO)
Target audiences include physicians, psychologists, allied health professionals, social workers, and other providers that may encounter individuals affected by FASD. It is ideally used as a supplement for in-person training by experts in the fields of dysmorphology, epidemiology, and neuropsychology.
FASD Training and Resources for Physicians, Nurses, Social Workers, Staff
Free online trainings are available for healthcare providers who care for women at risk for an alcohol-exposed pregnancy, and for those who work with individuals living with fetal alcohol spectrum disorders (FASDs). These online trainings provide strategies to improve the delivery of care related to FASDs and their prevention.
Seattle Pacific University Video 2014
The Initiative for Individuals with Intellectual and Developmental Disabilities
"Sensory Processing Perspectives to Promote Home, School, and Community Participation for Children with Intellectual and Developmental Disabilities."
The Families Moving Forward (FMF) Program is a behavioral consultation intervention delivered by trained providers. The treatment can be customized to match the needs of many different families. FMF was tailored for families raising children 3-12 years with prenatal exposure (PAE) or fetal alcohol spectrum disorders (FASD), who have clinically concerning behavior problems. This group of families often feels caregiving stress, and seeks mental health care or aftercare following an FASD diagnosis. Yet providers are often uncertain how to best serve them.
The FMF Program offers a specialized intervention approach which providers can learn through telehealth or in-person training. There is a carefully laid out program manual and accessible after-training on a password-protected website. Clinically, the FMF Program combines positive behavior support techniques with motivational interviewing (MI) and cognitive-behavioral treatment (CBT). The FMF Program is scientifically validated through research.
The National FASD Collaborative Project will be hosting 39 free webinars for the 2021-2022 academic year, from September 2021 through August 2022.
Below you will find links to the schedule of webinars for each season of the year, as well as our on-demand webinars. Nearly all webinars this year will be recorded and added to the 2021-2022 Recorded Webinars page for on-demand viewing as the year progresses.
Registration for webinars are at the links below.
Information about continuing education graduate credit and certificates of completion can be found here.
Want a printable handout of our entire 2021-2022 webinar series to share with others or review yourself? You can find an 8-page .pdf copy to print or share here.
"This guide reviews screening tools for alcohol use and interventions for pregnant women and women of childbearing age to prevent fetal alcohol spectrum disorders (FASD). It also outlines methods for identifying people living with FASD and modifying treatment accordingly."
FAFASD Families Affected by FASD
FAFASD presents trainings about caring for, living with, working with, and supporting people with FASDs using the neurobehavioral (brain-based) model.
PROOF Alliance FASD Training
(See full description below, "Educators")
"MILE" Training Emory University
Math Interactive Learning Experience is interactive online training for caregivers, teachers, psychologists in teaching Math/managing behavior in children with FASD.
(See full description below, "Educators")
Brief video on importance of FASD awareness in our school systems. Feasible and inspiring approach.
In March 2017, the Duke Center for Science Education, Duke Institute for Brain Sciences, and Duke Program for Education presented a symposium for K-8 educators, school psychologists, and nurses on understanding and educating children affected by fetal alcohol spectrum disorders (FASDs).
For more information on FASD and the Duke Symposium
MILE, Math Interactive Learning Experience is interactive online training for caregivers, teachers, psychologists in teaching Math/managing behavior in children with FASD. Claire Coles, a researcher at Emory University helped to develop this evidence-based approach.
"MILE includes teaching methods and manuals for caregivers, teachers, and tutors focusing on FASD facts, Caregiver Advocacy, Behavior Management and Mathematics. We found that children who received the 6-week intervention showed significant improvement in math skills and in Graphomotor (handwriting) skills in comparison to a randomly assigned group who did not. Parents who participated in the program were well satisfied with it and reported that their children’s behavior had improved significantly.(Coles, et al.,2009)."
Dr. Sandra G. Bernstein Clarren has worked in the field of special education for over 30 years. Initially she worked as a special education resource teacher and diagnostician in the United States and England. After receiving her doctorate from the University of Washington, she worked as a school psychologist in hospital and school settings and at the Fetal Alcohol Syndrome Diagnostic and Prevention Network at the University of Washington.
*This reference was published in 2004 - please refer to "Research" for current statistics on FASD prevalence and diagnostic terms.
Developed by Deb Evensen and Jan Lutke
This workshop video, introduced by Deb Evensen, teaches simple practical strategies for working with all children – but especially designed for children with a history of prenatal alcohol exposure (FASD), trauma, and other brain-based differences. While the video shows a school setting, the techniques were developed for children in community settings like after school programs and at home, as well as schools. These techniques are fun, easy to use – and make a positive difference for children and the professionals working with them.
Alaska Children's Trust